Detalhe da pesquisa
1.
Barriers of Acceptance to Hospice Care: a Randomized Vignette-Based Experiment.
J Gen Intern Med
; 38(2): 277-284, 2023 02.
Artigo
em Inglês
| MEDLINE | ID: mdl-35319086
2.
Enhanced Access and Parents' Preferred Contact for a Child's Chronic Condition.
J Pediatr
; 180: 235-240.e1, 2017 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-27742127
3.
Patient and Provider Perspectives on Communication About Body Image With Adolescents and Young Adults With Cystic Fibrosis.
J Pediatr Psychol
; 42(9): 1040-1050, 2017 10 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-28369522
4.
Friendship quality and health-related outcomes among adolescents with cystic fibrosis.
J Pediatr Psychol
; 40(3): 349-58, 2015 Apr.
Artigo
em Inglês
| MEDLINE | ID: mdl-25096236
5.
Exploring perceptions of and decision-making about CFTR modulators.
Pediatr Pulmonol
; 2024 Mar 08.
Artigo
em Inglês
| MEDLINE | ID: mdl-38456611
6.
Symptoms and quality of life in adults with cystic fibrosis: A cross-sectional analysis of the InSPIRe:CF trial.
J Cyst Fibros
; 2024 Mar 08.
Artigo
em Inglês
| MEDLINE | ID: mdl-38461123
7.
Prevalence of unmet pain and symptom management needs in adults with cystic fibrosis.
J Cyst Fibros
; 22(2): 352-355, 2023 03.
Artigo
em Inglês
| MEDLINE | ID: mdl-35973901
8.
Clinician perspectives on barriers and solutions to symptom management in cystic fibrosis.
J Cyst Fibros
; 22(6): 1100-1103, 2023 Nov.
Artigo
em Inglês
| MEDLINE | ID: mdl-37263825
9.
Changes in fecal elastase-1 following initiation of CFTR modulator therapy in pediatric patients with cystic fibrosis.
J Cyst Fibros
; 22(6): 996-1001, 2023 Nov.
Artigo
em Inglês
| MEDLINE | ID: mdl-37758535
10.
Satisfaction and effectiveness of opioid pain management among adults with cystic fibrosis: A mixed methods study.
J Cyst Fibros
; 21(1): e15-e22, 2022 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-34257058
11.
Associations between demographic characteristics and unmet supportive care needs in adults with cystic fibrosis.
BMJ Support Palliat Care
; 12(e2): e281-e284, 2022 Jul.
Artigo
em Inglês
| MEDLINE | ID: mdl-31473650
12.
Integrating specialist palliative care to improve care and reduce suffering: cystic fibrosis (InSPIRe:CF) - study protocol for a multicentre randomised clinical trial.
BMJ Open Respir Res
; 9(1)2022 09.
Artigo
em Inglês
| MEDLINE | ID: mdl-36126995
13.
Enhancing care for individuals with advanced cystic fibrosis lung disease.
Pediatr Pulmonol
; 56 Suppl 1: S69-S78, 2021 02.
Artigo
em Inglês
| MEDLINE | ID: mdl-32609949
14.
Semiparametric estimation of the proportional rates model for recurrent events data with missing event category.
Stat Methods Med Res
; 30(7): 1624-1639, 2021 07.
Artigo
em Inglês
| MEDLINE | ID: mdl-34142905
15.
Development of an Advance Care Planning Protocol in a Cystic Fibrosis Outpatient Clinic.
J Palliat Med
; 24(9): 1383-1386, 2021 09.
Artigo
em Inglês
| MEDLINE | ID: mdl-34191614
16.
Models of Palliative Care Delivery for Individuals with Cystic Fibrosis: Cystic Fibrosis Foundation Evidence-Informed Consensus Guidelines.
J Palliat Med
; 24(1): 18-30, 2021 01.
Artigo
em Inglês
| MEDLINE | ID: mdl-32936045
17.
Assessing Practices, Beliefs, and Attitudes about Palliative Care among People with Cystic Fibrosis, Their Caregivers, and Clinicians: Results of a Content Analysis.
J Palliat Med
; 24(11): 1650-1656, 2021 11.
Artigo
em Inglês
| MEDLINE | ID: mdl-33885355
18.
Highlights from the 2019 North American Cystic Fibrosis Conference.
Pediatr Pulmonol
; 55(9): 2225-2232, 2020 09.
Artigo
em Inglês
| MEDLINE | ID: mdl-32573948
19.
Palliative care skills in CF: Perspectives of adults with CF, caregivers, and CF care team members.
Pediatr Pulmonol
; 55(8): 2017-2024, 2020 08.
Artigo
em Inglês
| MEDLINE | ID: mdl-32384215
20.
Palliative Care Needs of Individuals with Cystic Fibrosis: Perspectives of Multiple Stakeholders.
J Palliat Med
; 23(7): 957-963, 2020 07.
Artigo
em Inglês
| MEDLINE | ID: mdl-32023421